PACIO Advance Directive Interoperability Implementation Guide
0.1.0 - STU 1 Ballot

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## Patient Stories and Personas

### Create in a digital form and make available for sharing and accessing advance directive information

Angie has Sickle Cell Disease. She worries that if she contracts COVID-19 and becomes unable to communicate with medical personnel, they won’t be familiar with her history and specific treatment needs.

She uses a consumer facing tool to create a digital advance directive or upload a scanned copy of her paper advance directive document. Her interoperable digital advance directive information is made available by being stored in a registry/repository/HIE/QHIN/EHR.

Angie shares her advance directive information with her medical proxy/healthcare agent and primary care physician so if either are contacted by a treating provider in an emergency, they can make her advance directive accessible to inform treatment.