Project Summary for Essential Information for Children with Special Health Care Needs
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Project Details
Number | 1111 View Ballot Items List (with NIBs) |
---|---|
Name | Essential Information for Children with Special Health Care Needs |
Sponsor(s) | Patient Care Work Group |
Co-Sponsor(s) | Emergency Care Work Group, Patient Care Work Group |
Steering Division | Clinical |
Description | Children commonly have specific needs requiring multidisciplinary care and communication. We aim to develop required templates and implementation guide for an electronic format (e.g., CDA) that includes important information about patient (and, when appropriate, parental) preferences and directives when seeking care from health care providers in a variety of settings including urgent or emergent care. We will identify information requirements from existing examples of emergency information forms and personal health records for children with special healthcare needs. Subject matter areas may include relevant procedures to avoid (e.g., vascular access), communication, behaviour, and contingency-based plans. We will perform analysis against existing standards to identify gaps Naming of this document is included in scope. Advance directives will not be included scope. |
Project Facilitator | Russell Leftwich, Michael Padula, Pele Yu |
Status | Active Project (Resources assigned to pjt) |
SD Approval Date | Jun 18, 2014 |
TSC Approval Date | Jun 27, 2014 |
Type | Ballot - STU to Normative |
Objectives / Deliverables | Information Requirements Determined - Target: 8/31/14 Complete Gap Analysis - Target: 9/15/14 Evaluate and select technical standard for the electronic format - Target: 10/31/14 Submit for first DSTU Ballot - Target: 11/04/14 Complete DSTU Ballot Reconciliation - Target: March 2015 Publish DSTU R1 - Target: May 2015 Complete DSTU Comment Period - Target: May 2017 Submit for First Normative Ballot - Target: Nov 2017 Complete Normative ballot Reconciliation - Target: March 2017 Publish Normative R1 - Target: May 2017 Project End Date (all objectives have been met) - Target: May 2017 |
Next Milestone Date | 2023 May WGM |
Project End Date | 2024 May WGM |
Project Intent | Implementation Guide |
Project Need | This project is needed to facilitate communication and information exchange for children with complex health needs, particularly at transitions to new environments. |
Implementers | 1. Children’s Hospital of Philadelphia 2. St. Louis Children’s Hospital 3. Tennessee Department of Health |
Security Risks | |
External Drivers | |
Common Names / Keywords/ Aliases | |
Lineage | |
Dependancies | No dependencies at this time. |
Project Document Repository | |
Backwards Compatibility | N/A |
External Vocabularies | |
Products | V3 Documents-Clinical (e.g. CDA) |
Joint Copyright? | No |
External Pjt Collaborators | |
Realm | Universal |
HL7 Affiliate | |
Stakeholders | Standards Development Organizations (SDOs) |
Vendors | EHR, PHR |
Providers | Emergency Services; Healthcare Institutions (hospitals, long term care, home care, mental health) |
Ballot Cycle Info | |
Misc Notes | 2017 June: TSC approved the Dissolution Request for the Child Health WG at TSC Tracker 13522. The WG will be absorbed by the Patient Care WG,. PMO transferred project to Patient Care. |
U.S. Govt Interest? | Yes |
USRSC Approval | |
FMG Approval | |
ARB Approval | |
Start Date | May 14, 2014 |
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