International Patient Summary Implementation Guide Implementation Guide: STU2 Ballot

This page is part of the International Patient Summary Implementation Guide (v0.2.0: STU 1 Ballot 2) based on FHIR v3.5.0. The current version which supercedes this version is 1.1.0. For a full list of available versions, see the Directory of published versions

International Patient Summary Implementation Guide

This specification is currently undergoing ballot and connectathon testing. It is subject to change, which may be significant, as part of that process. Feedback is welcome and may be submitted through the FHIR gForge tracker indicating "International Patient Summary" as the specification. If balloting on this IG, please, if possible, submit your comments via the tracker and then reference the tracker ids in your ballot submission spreadsheet.

Introduction

An International Patient Summary (IPS) document is an electronic health record extract containing essential healthcare information intended for use in the unscheduled, cross-border care scenario, comprising at least the required elements of the IPS dataset. The IPS dataset is a minimal and non-exhaustive patient summary dataset, specialty-agnostic, condition-independent, but readily usable by clinicians for the cross-border unscheduled care of a patient.

Purpose

The goal of this Implementation Guide is to identify the required clinical data, vocabulary and value sets for an international patient summary. The international patient summary is specified either as a templated document using HL7 CDA R2 (see the IPS Wiki here or as an HL7 FHIR Composition (as described in this implementation guide). The primary use case is to provide support for cross-border or cross-juridictional emergency and unplanned care.

This specification aims to support:

  • Cross-jurisdictional patient summaries (through adaptation/extension for multi-language and realm scenarios, including translation).
  • Emergency and unplanned care in any country, regardless of language.
  • Value sets based on international vocabularies that are usable and understandable in any country.
  • Data and metadata for document-level provenance.

Project Background

See further details on the project background in the IPS Wiki here.

Note for balloters: The link to the IPS Wiki is intended to provide additional background information that may be useful to readers, but the content on the Wiki pages is not included in the ballot materials and is not subject to ballot comments.

Project Scope

As expressed in the introduction, the International Patient Summary is:

  • a minimal and non-exhaustive patient summary,
  • specialty-agnostic,
  • condition-independent,
  • but readily usable by clinicians for cross-border unscheduled care of a patient. In this context, minimal and non-exhaustive means that an IPS is not intended to reproduce (the entire) content of an Electronic Health Record (EHR).

Specialty-agnostic means that an IPS is not filtered for a specialty. As an example, allergies are not filtered to the specialty of internal medicine, thus may also include food allergies, if considered to be relevant for, e.g. unplanned care.

Condition-independent means that an IPS is not specific to particular conditions, and focuses on the patient current condition(s).

Furthermore the scope of the IPS is global. Although this is a major challenge, this implementation guide takes various experiences and newer developments into account to address global feasibility as far as possible.

Relationships with Other Projects and Guidelines

See further details on the IPS project relationships with other projects and guidelines in the IPS Wiki here.

Ballot Status

This Implementation Guide is being balloted as STU with the intention to go normative in a subsequent ballot cycle.

Authors and Contributors

Role Name Organization contact
Primary Editor Giorgio Cangioli, PhD Consultant, HL7 Italy giorgio.cangioli@gmail.com
Primary Editor Rob Hausam Hausam Consulting LLC rob@hausamconsulting.com
Primary Editor Dr Kai U. Heitmann Heitmann Consulting and Services, Gefyra GmbH, HL7 Germany info@kheitmann.de
Primary Editor François Macary Phast francois.macary@phast.fr
Contributor Dr Christof Geßner Gematik christof.gessner@gematik.de
Contributor Gary Dickinson CentriHealth gary.dickinson@ehr-standards.com
Contributor Catherine Chronaki HL7 International Foundation chronaki@gmail.com