Common Data Models Harmonization
1.0.0 - STU 1 Publication

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## : PCORNet Pro Type - XML Representation

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    <CodeSystem xmlns="http://hl7.org/fhir">
      <id value="pcornet-pro-type"/>
      <text>
        <status value="generated"/>
        <div xmlns="http://www.w3.org/1999/xhtml"><p>This code system http://hl7.org/fhir/us/cdmh/CodeSystem/pcornet-pro-type defines the following codes:</p><table class="codes"><tr><td style="white-space:nowrap"><b>Code</b></td><td><b>Display</b></td><td><b>Definition</b></td></tr><tr><td style="white-space:nowrap">PM<a name="pcornet-pro-type-PM"> </a></td><td>PROMIS</td><td>Self-reported and parent-reported measures of global, physical, mental, and social health for adults and children in the general population and those living with a chronic condition.</td></tr><tr><td style="white-space:nowrap">NQ<a name="pcornet-pro-type-NQ"> </a></td><td>Neuro-QoL</td><td>Self-reported and proxy-reported measures of physical, mental, and social health for adults and children living with a neurological condition.</td></tr><tr><td style="white-space:nowrap">AM<a name="pcornet-pro-type-AM"> </a></td><td>ASQC-Me</td><td>Self-reported measures of physical, mental, and social health for adults living with sickle cell disease.</td></tr><tr><td style="white-space:nowrap">NT<a name="pcornet-pro-type-NT"> </a></td><td>NIH Toolbox</td><td>Performance tests of cognitive, motor, and sensory function and self-reported measures of emotional function for adults and children in the general population and those living with a chronic condition.</td></tr><tr><td style="white-space:nowrap">PC<a name="pcornet-pro-type-PC"> </a></td><td>PRO_CTCAE</td><td>A patient-reported outcome measurement system developed by the National Cancer Institute to capture symptomatic adverse events in patients on cancer clinical trials.</td></tr><tr><td style="white-space:nowrap">LC<a name="pcornet-pro-type-LC"> </a></td><td>LOINC</td><td>Terminology / vocabulary used to describe the PRO item is LOINC.</td></tr><tr><td style="white-space:nowrap">HC<a name="pcornet-pro-type-HC"> </a></td><td>HCAHPS</td><td>HCAHPS initiative is to provide a standardized survey instrument and data collection methodology for measuring patients perspectives on hospital care.</td></tr><tr><td style="white-space:nowrap">NI<a name="pcornet-pro-type-NI"> </a></td><td>No information</td><td>Terminology / vocabulary used to describe the PRO item is No information.</td></tr><tr><td style="white-space:nowrap">UN<a name="pcornet-pro-type-UN"> </a></td><td>Unknown</td><td>Terminology / vocabulary used to describe the PRO item is Unknown.</td></tr><tr><td style="white-space:nowrap">OT<a name="pcornet-pro-type-OT"> </a></td><td>Other</td><td>Terminology / vocabulary used to describe the PRO item is Other.</td></tr></table></div>
      </text>
      <url value="http://hl7.org/fhir/us/cdmh/CodeSystem/pcornet-pro-type"/>
      <version value="1.0.0"/>
      <name value="PCORNetProType"/>
      <title value="PCORNet Pro Type"/>
      <status value="active"/>
      <date value="2021-09-06"/>
      <publisher
                 value="HL7 International - Biomedical Research and Regulation Work Group"/>
      <contact>
        <telecom>
          <system value="url"/>
          <value value="http://hl7.org/Special/committees/rcrim"/>
        </telecom>
      </contact>
      <description
                   value="The PCORNet Pro Type contains the codes to be used by PCORNet data marts."/>
      <jurisdiction>
        <coding>
          <system value="urn:iso:std:iso:3166"/>
          <code value="US"/>
        </coding>
      </jurisdiction>
      <copyright
                 value="Used by permission of HL7, all rights reserved Creative Commons License"/>
      <caseSensitive value="true"/>
      <content value="complete"/>
      <count value="9"/>
      <concept>
        <code value="PM"/>
        <display value="PROMIS"/>
        <definition
                    value="Self-reported and parent-reported measures of global, physical, mental, and social health for adults and children in the general population and those living with a chronic condition."/>
      </concept>
      <concept>
        <code value="NQ"/>
        <display value="Neuro-QoL"/>
        <definition
                    value="Self-reported and proxy-reported measures of physical, mental, and social health for adults and children living with a neurological condition."/>
      </concept>
      <concept>
        <code value="AM"/>
        <display value="ASQC-Me"/>
        <definition
                    value="Self-reported measures of physical, mental, and social health for adults living with sickle cell disease."/>
      </concept>
      <concept>
        <code value="NT"/>
        <display value="NIH Toolbox"/>
        <definition
                    value="Performance tests of cognitive, motor, and sensory function and self-reported measures of emotional function for adults and children in the general population and those living with a chronic condition."/>
      </concept>
      <concept>
        <code value="PC"/>
        <display value="PRO_CTCAE"/>
        <definition
                    value="A patient-reported outcome measurement system developed by the National Cancer Institute to capture symptomatic adverse events in patients on cancer clinical trials."/>
      </concept>
      <concept>
        <code value="LC"/>
        <display value="LOINC"/>
        <definition
                    value="Terminology / vocabulary used to describe the PRO item is LOINC."/>
      </concept>
      <concept>
        <code value="HC"/>
        <display value="HCAHPS"/>
        <definition
                    value="HCAHPS initiative is to provide a standardized survey instrument and data collection methodology for measuring patients perspectives on hospital care."/>
      </concept>
      <concept>
        <code value="NI"/>
        <display value="No information"/>
        <definition
                    value="Terminology / vocabulary used to describe the PRO item is No information."/>
      </concept>
      <concept>
        <code value="UN"/>
        <display value="Unknown"/>
        <definition
                    value="Terminology / vocabulary used to describe the PRO item is Unknown."/>
      </concept>
      <concept>
        <code value="OT"/>
        <display value="Other"/>
        <definition
                    value="Terminology / vocabulary used to describe the PRO item is Other."/>
      </concept>
    </CodeSystem>